Rare Concierge by Rare Genes offers personalized support by connecting rare disease parents and caregivers with tailored resources, advocacy groups, and disease-specific information to help navigate their unique challenges. Reach out to connect with a patient services guide.

This site provides support for families affected by rare diseases like CerTra Syndrome, creating a community where parents and caregivers can access emotional support and essential resources.

This site offers a comprehensive repository of resources, including advocacy groups, financial support, and care products, tailored specifically for rare disease patients and caregivers

This website simplifies caregiving by providing a centralized platform for organizing medical information, managing medications, coordinating care, and sharing important details with other caregivers, teachers, doctors, babysitters all through an easy-to-use interface.